39 - Retinitis Pigmentosa - California

Moments Like This Spotlight - February 2026

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Shana's Moment:

“So I went into this restroom, and it was one of the big ones that are dim with different sections. When I was going to leave I arrived in an area that had a bench and mirrors everywhere...and I mean everywhere. I'm not sure why they call it a fun house because they're NOT fun. So basically I had to call out "hellooo...is anyone there...helppp" and then giggled and laughed as a nice woman led me out of the fun house of a bathroom.”

Beyond the Moment:

What's an activity or hobby that you refuse to give up doing, despite the changes to or loss of your vision? 

"Climbing trees & adventuring in nature"

What’s something that living with vision loss has taught you about yourself?

"It’s helped me see myself more deeply, and in turn, see others more clearly for who they are."

What’s a moment, related to your vision, that still makes you laugh? 

"Knowing there’s a wall or corner coming up and that I'll inevitably run nose first into it."

When speaking about your vision, what’s something people are usually surprised to learn about your day-to-day life?

"People are usually surprised by how much creative problem-solving goes into my day. I’m constantly MacGyvering small tools and workarounds just to do things most people never think twice about."

What’s one misconception about your vision that you wish people knew and/or would let go of?

"That blind people have a certain 'look.' For example, it’s not abnormal to hear things like 'You don’t look blind.”

With your diagnosis in mind, what’s one “rare perspective” you’ve gained? 

"I’ve learned to laugh first instead of apologize, because doing things differently doesn’t have to be awkward unless I make it awkward. Needing help used to feel like falling behind, but now I see it as just part of being human. Everyone needs help sometimes, mine just looks a little different."

A Little More From Shana:

"Losing my physical vision did not leave me in the dark. It actually forced me to remember who I am and tap into my inner light. This flame burns much brighter than any physical sight ever could. While some see a disability, I have discovered an ability to see far beyond the surface. I now tune into the unique frequency signatures of those around me to connect on a soul level. I see a person's true essence rather than just their outward appearance. This journey is an awakening to a clarity that turns every shadow into a profound insight. When the eyes close, the soul finally opens to its authentic power."