RP Diagnosis Guide

If you’ve recently been diagnosed with Retinitis Pigmentosa (RP), this guide was created to help you better understand what may lie ahead. Written from personal experience, it offers practical insight, encouragement, and perspective from someone living with RP.

Download the free guide below.

[Download PDF]

Created by Rare Perspective Co in collaboration with the Foundation Fighting Blindness

June 2026

Anthony

“I reached for a free Costco meatball…I’m not about to disrespect a free meatball...Then accidentally knocked over the backup supply. My Guide Dog thought it was the greatest day in Costco history.”

SEE ANTHONY'S STORY

May 2026

Randall

“I was dressed for the camera and proceeded with my speech. It was 7 minutes long. I said thank you and waited for a response… only silence. Then I realized I wasn’t even in the meeting.”

SEE RANDALL'S STORY

April 2026

Jen

“I was cooking with a house full of kids and looking for the butter. They told me to put my hand down directly in front of me…now each time something is directly in front of me, someone yells ‘BUTTER!’”

SEE JEN'S STORY

MARCH 2026

STEPHANIE

"I was in a shop with my daughter when I grabbed what felt like an amazing purse. She urgently whispred to STOP...Turns out, it was attached to another customer! We laughed so hard."

SEE STEPHANIE'S STORY